Spring 2008 Features:
2CARE: COENZYME Q10 IN HUNTINGTON'S DISEASE - THE 2CARE TRIAL IS NOW ENROLLING STUDY PARTICIPANTS
The 2CARE study was launched the week of March 17, 2008. Please see Currently Enrolling for more 2CARE information, as well as other trials that are enrolling participants.
THE RESEARCH SPOTLIGHT
One of the most popular areas of this web site provides a community-written overview about different HD research topics. Please see the Research Spotlight for more information.
SET-HD The Huntington Project SET-HD initiative has collected nominations from researchers, scientists, and community members for compounds that may be useful for clinical study in Huntington's disease. Some of these nominations are reviewed in detail in the SET-HD Compound Review section of this web site.
COHORT UPDATE
The first patient was enrolled in COHORT on February 14, 2006. There are over 1,200 participants enrolled, with more participants joining the study weekly. Thank you Huntington’s community and HSG research sites for all of your efforts to propel the COHORT study forward. 42 of the proposed 43 participating research sites are currently up and running and able to enroll participants. The remaining site is processing their paperwork and should be accepting participants soon. We are recruiting individuals with HD and individuals from HD families – please see the COHORT Participating Site list for a site near you.
TETRABENAZINE
December 8, 2007...An FDA advisory committee unanimously recommended approval of tetrabenazine for the treatment of chorea associated with HD. The FDA still must approve the drug, but the committee's unanimous recommendation makes this approval more likely. If approved, tetrabenazine will then become the first drug for HD approved in the United States.
UPCOMING MEETING LINKS
Huntington's Disease Society of America National Youth Alliance (NYA), June 5, 2008 (read more...)
Huntington's Disease Society of America Convention, June 6-8, 2008 (read more...)
European HD Network, September 5-8, 2008 (read more...)
World Congress on Huntington's Disease, September 12-15, 2009 (read more...)